Welcome!
ZebraCARE Community Needs Survey
Your responses help us build accessible, evidence-informed services for the rare disease community.
This quick survey takes about 1 minute
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Where in Canada do you live?
Alberta
British Columbia
Saskatchewan/Manitoba
Ontario
Newfoundland and Labrador/New Brunswick/Nova Scotia/Prince Edward Island
Yukon/Northwest Territories/Nunavut
Quebec
Prefer Not to Say
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Which of the following describes you?
Choose as many as you like
A person living with a rare disease
Caregiver or family member
Healthcare or allied health professional
Mental health professional
Advocate / community leader
Researcher
Other
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Which counselling services would be most helpful to you?
Choose as many as you like
Adult Counselling
Teen Counselling
Child Counselling (Ages 7-12)
Couples and Family Counselling
Group Counselling
Not Sure Yet
Other
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What future services would you like to see us offer?
Choose as many as you like
Support or skills groups tailored to specific conditions
Music Therapy
Art Therapy
Recreation Therapy
Occupational Therapy
Vocational Rehabilitation
Speech Therapy
Other
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Do you currently have any funding for counselling?
Choose as many as you like
Yes - Extended Health Benefits
Yes - Workplace Benefits
Yes - Government or Non-profit Funding
No
Not Sure
Other (please specify)
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Is there anything else you’d like us to know about your needs, barriers to access, or what would help you most?
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Thank you!
Together, we can create more accessible care for the rare disease community.
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